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Caregiver Advocacy GROUPS/RESOURCE CTR.

Caregiver Resource Center

Mount Sinai Medical Center

1425 Madison Avenue

East Building, Room L-4-89 (4th Floor)

New York, NY 10029

 

ALZHEIMER’S DISEASE

Alzheimer’s Association

919 North Michigan Avenue, Suite 1100

Chicago, IL 60611

(800) 272-3900

(312) 335-8700

www.alz.org

 

Alzheimer’s Disease Education

and Referral Service

The ADEAR Center

P.O. Box 8250

Silver Spring, MD 20907

(800) 438-4380

(301) 495-3311

www.alzheimers.org

 

ARTHRITIS

Arthritis Foundation

1650 Bluegrass Lakes Parkway

Alpharetta, GA 30004

(800) 283-7800

www.arthritis.org

 

A D V O C A C Y G R O U P S

B Y D I S E A S E

 

AIDS/HIV

American Foundation for AIDS Research

120 Wall Street, 13th Floor

New York, NY 10005

(800) 39-amfAR (392-6327)

(212) 806-1600

www.amfar.org

 

HIV/AIDS Treatment Information Service

P.O. Box 6303

Rockville, MD 20849

(800) HIV-0440 (448-0440)

(301) 738-6616

www.hivatis.org

 

Centers for Disease Control and Prevention

National HIV/AIDS Hotline

(800) 342-AIDS

(800) 344-SIDA (Spanish)

(800) AIDS-889 (for the deaf/hearing-impaired)

www.cdc.gov

 

Gay Men’s Health Crisis

119 West 24th Street

New York, NY 10011

(800) AIDS-NYC (243-7692)

(212) 807-6655

 

(212) 645-7470 (for the deaf/hearing-impaired)

www.gmhc.org

 

National Association of People with AIDS

1413 K Street, NW, 7th Floor

Washington, DC 20005

(202) 898-0414

www.napwa.org

 

DIABETES

 

American Diabetes Association

1701 North Beauregard Street

Alexandria, VA 22311

(800) DIABETES (342-2383)

(703) 549-1500

www.diabetes.org

 

EPILEPSY

 

Epilepsy Foundation of America

4351 Garden City Drive

Landover, MD 20785

(800) EFA-1000 (332-1000)

(301) 459-3700

www.efa.org

 

HEART DISEASE AND STROKE

 

American Heart/Stroke Association

7272 Greenville Avenue

Dallas, TX 75231

(800) AHA-USA1 (242-8721) (Heart and Stroke

Information)

(888) 4-STROKE (Stroke Information)

(888) MY HEART (Women’s Health Information)

www.americanheart.org

www.strokeassociation.org

National Stroke Association

96 Inverness Drive East, SuiteI

Englewood, CO, 80112

(800) 787-6537

(303) 649-9299

www.stroke.org

 

CANCER

American Cancer Society

1599 Clifton Road

Atlanta, GA 30329

(800) ACS-2345 (227-2345)

www.cancer.org

 

National Cancer Institute

Cancer Information Service

Building 31, Room 10A07

31 Center Drive MSC 2580

Bethesda, MD 20892

(800) 4-CANCER (422-6237)

www.cancer.gov

Cancer Care, Inc.

275 Seventh Avenue

New York, NY 10001

(800) 813-HOPE (outside the tri-state area)

(212) 302-2400

www.cancercareinc.org

CEREBRAL PALSY

United Cerebral Palsy Association

1600 L Street, NW, Suite 700

Washington, DC 20036

(800) USA-5-UCP (872-5827)

(202) 776-0406

www.ucpa.org

CHRONIC OBSTRUCTIVE PULMONARY

DISEASE

American Lung Association

1740 Broadway

New York, NY 10019

(800) 586-4872

(212) 315-8700

www.lungusa.org

CYSTIC FIBROSIS

Cystic Fibrosis Foundation

6931 Arlington Road, Suite 200

Bethesda, MD 20814

(800) FIGHT CF (344-4823)

(301) 951-4422

www.cff.org

National Depressive and Manic Depressive

Association

730 Franklin Street, Suite 501

Chicago, IL 60610

(800) 82-NDMDA (826-3632)

(312) 642-0049

www.ndmda.org

National Institute of Mental Health

NIMH Public Inquiries

6001 Executive Boulevard, Rm. 8184, MSC 9663

Bethesda, MD 20892

(800) 421-4211

(301) 443-4513

www.nimh.nih.gov

National Mental Health Association

1021 Prince Street

Alexandria, VA 22314

(800) 969-NMHA (6642)

(703) 684-7722

www.nmha.org

MULTIPLE SCLEROSIS

The National Multiple Sclerosis Society

733 Third Avenue

New York, NY 10017

(800) FIGHT-MS (344-4867)

www.nmss.org

www.msnyc.org

PAIN

American Chronic Pain Association

P.O. Box 850

Rocklin, CA 95677

(916) 632-0922

www.theacpa.org

American Pain Foundation

111 South Calvert Street, Suite 2700

Baltimore, MD 21202

www.painfoundation.org

KIDNEY DISEASE

American Association of Kidney Patients

100 South Ashley Drive, Suite 280

Tampa, FL 33602

(800) 749-2257

www.aakp.org

American Kidney Fund

6110 Executive Boulevard, Suite 1010

Rockville, MD 20852

(800) 638-8299

(301) 881-3052

www.akfinc.org

The National Kidney Foundation

30 East 33rd Street, Suite 1100

New York, NY 10016

(800) 622-9010

(212) 889-2210

www.kidney.org

 

 

LIVER DISEASE

American Liver Foundation

75 Maiden Lane, Suite 603

New York, NY 10038

(800) GO LIVER (465-4837)

www.liverfoundation.org

 

MENTAL ILLNESS

American Psychiatric Association

1400 K Street, NW

Washington, DC 20005

(202) 682-6000

www.psych.org

American Psychological Association

750 First Street, NE

Washington, DC 20002-4242

(800) 374-2721

(202) 336-5500

www.apa.org

National Alliance for the Mentally Ill

Colonial Place Three

2107 Wilson Blvd., Suite 300

Arlington, VA 22201

(800) 950-NAMI (6264)

(703) 524-7600

www.nami.org

 

 

RARE DISORDERS

National Organization for Rare Disorders (NORD)

P.O. Box 8923

New Fairfield, CT 06812

(800) 999-NORD (6673)

(203) 746-6518

www.rarediseases.org

 

SICKLE CELL DISEASE

Sickle Cell Advocates for Research and

Empowerment, Inc.

P.O. Box 630127

Bronx, NY 10463

(718) 884-9670

www.defiers.com

 

Sickle Cell Disease Association of America, Inc.

National Headquarters

200 Corporate Pointe, Suite 495

Culver City California 90230

(800) 421-8453

(310) 216-6363

www.sicklecelldisease.org

 

VISUAL IMPAIRMENT

American Foundation for the Blind

11 Penn Plaza, Suite 300

New York, NY 10001

(800) AFB Line (232-5463)

(212) 502-7600

www.afb.org

The Lighthouse, Inc.

111 East 59th Street

New York, NY 10022

(800) 829-0500

(212) 821-9200

(212) 821-9713 (for the deaf/hearing-impaired)

www.lighthouse.org

 

PARALYSIS

Christopher Reeve Paralysis Foundation

500 Morris Avenue

Springfield, NJ 07081

(800) 225-0292

www.paralysis.org

Kent Waldrep National Paralysis Foundation

16415 Addison Road, Suite 550

Addison, TX 75001

(877) SCI-CURE (724-2873)

(972) 248-7100

www.kwnpf.org

National Spinal Cord Injury Hotline

2200 Kernan Drive

Baltimore, MD 21207

(800) 526-3456

www.scihotline.org

PARKINSON’S DISEASE

The American Parkinson Disease

Association, Inc.

1250 Hylan Blvd., Suite 4B

Staten Island, NY 10305

(800) 223-2732

(718) 981-8001

www.apdaparkinson.com

National Parkinson Foundation, Inc.

Bob Hope Parkinson Research Center

1501 N.W. 9th Avenue

Bob Hope Road

Miami, Florida 33136

(800) 327-4545

(305) 547-6666

www.parkinson.org

Health Care Financing Administration

7500 Security Boulevard

Baltimore, MD 21244

(800) MEDICARE (633-4227)

(410) 786-3000

(information about health care)

(Medicare information)

Hill-Burton Program

Health Resources and Services Administration

12300 Twinbrook, Suite 5200

Rockville, MD 20857

(800) 638-0742

(301) 443-5656

www.hrsa.dhhs.gov/osp/dfcr

Medicare Rights Center

(800) 333-4114

(212) 869-3850 (in New York City)

www.medicarerights.org

The Medicine Program

P. O. Box 515

Doniphan, MO 63935-0515

(573) 778-1118

www.themedicinepro

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