
Caregiver Advocacy GROUPS/RESOURCE CTR.
Caregiver Resource Center
Mount Sinai Medical Center
1425 Madison Avenue
East Building, Room L-4-89 (4th Floor)
New York, NY 10029
ALZHEIMER’S DISEASE
Alzheimer’s Association
919 North Michigan Avenue, Suite 1100
Chicago, IL 60611
(800) 272-3900
(312) 335-8700
Alzheimer’s Disease Education
and Referral Service
The ADEAR Center
P.O. Box 8250
Silver Spring, MD 20907
(800) 438-4380
(301) 495-3311
ARTHRITIS
Arthritis Foundation
1650 Bluegrass Lakes Parkway
Alpharetta, GA 30004
(800) 283-7800
A D V O C A C Y G R O U P S
B Y D I S E A S E
AIDS/HIV
American Foundation for AIDS Research
120 Wall Street, 13th Floor
New York, NY 10005
(800) 39-amfAR (392-6327)
(212) 806-1600
HIV/AIDS Treatment Information Service
P.O. Box 6303
Rockville, MD 20849
(800) HIV-0440 (448-0440)
(301) 738-6616
Centers for Disease Control and Prevention
National HIV/AIDS Hotline
(800) 342-AIDS
(800) 344-SIDA (Spanish)
(800) AIDS-889 (for the deaf/hearing-impaired)
Gay Men’s Health Crisis
119 West 24th Street
New York, NY 10011
(800) AIDS-NYC (243-7692)
(212) 807-6655
(212) 645-7470 (for the deaf/hearing-impaired)
National Association of People with AIDS
1413 K Street, NW, 7th Floor
Washington, DC 20005
(202) 898-0414
DIABETES
American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
(800) DIABETES (342-2383)
(703) 549-1500
EPILEPSY
Epilepsy Foundation of America
4351 Garden City Drive
Landover, MD 20785
(800) EFA-1000 (332-1000)
(301) 459-3700
HEART DISEASE AND STROKE
American Heart/Stroke Association
7272 Greenville Avenue
Dallas, TX 75231
(800) AHA-USA1 (242-8721) (Heart and Stroke
Information)
(888) 4-STROKE (Stroke Information)
(888) MY HEART (Women’s Health Information)
National Stroke Association
96 Inverness Drive East, SuiteI
Englewood, CO, 80112
(800) 787-6537
(303) 649-9299
CANCER
American Cancer Society
1599 Clifton Road
Atlanta, GA 30329
(800) ACS-2345 (227-2345)
National Cancer Institute
Cancer Information Service
Building 31, Room 10A07
31 Center Drive MSC 2580
Bethesda, MD 20892
(800) 4-CANCER (422-6237)
Cancer Care, Inc.
275 Seventh Avenue
New York, NY 10001
(800) 813-HOPE (outside the tri-state area)
(212) 302-2400
CEREBRAL PALSY
United Cerebral Palsy Association
1600 L Street, NW, Suite 700
Washington, DC 20036
(800) USA-5-UCP (872-5827)
(202) 776-0406
CHRONIC OBSTRUCTIVE PULMONARY
DISEASE
American Lung Association
1740 Broadway
New York, NY 10019
(800) 586-4872
(212) 315-8700
CYSTIC FIBROSIS
Cystic Fibrosis Foundation
6931 Arlington Road, Suite 200
Bethesda, MD 20814
(800) FIGHT CF (344-4823)
(301) 951-4422
National Depressive and Manic Depressive
Association
730 Franklin Street, Suite 501
Chicago, IL 60610
(800) 82-NDMDA (826-3632)
(312) 642-0049
National Institute of Mental Health
NIMH Public Inquiries
6001 Executive Boulevard, Rm. 8184, MSC 9663
Bethesda, MD 20892
(800) 421-4211
(301) 443-4513
National Mental Health Association
1021 Prince Street
Alexandria, VA 22314
(800) 969-NMHA (6642)
(703) 684-7722
MULTIPLE SCLEROSIS
The National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
(800) FIGHT-MS (344-4867)
PAIN
American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
(916) 632-0922
American Pain Foundation
111 South Calvert Street, Suite 2700
Baltimore, MD 21202
KIDNEY DISEASE
American Association of Kidney Patients
100 South Ashley Drive, Suite 280
Tampa, FL 33602
(800) 749-2257
American Kidney Fund
6110 Executive Boulevard, Suite 1010
Rockville, MD 20852
(800) 638-8299
(301) 881-3052
The National Kidney Foundation
30 East 33rd Street, Suite 1100
New York, NY 10016
(800) 622-9010
(212) 889-2210
LIVER DISEASE
American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
(800) GO LIVER (465-4837)
MENTAL ILLNESS
American Psychiatric Association
1400 K Street, NW
Washington, DC 20005
(202) 682-6000
American Psychological Association
750 First Street, NE
Washington, DC 20002-4242
(800) 374-2721
(202) 336-5500
National Alliance for the Mentally Ill
Colonial Place Three
2107 Wilson Blvd., Suite 300
Arlington, VA 22201
(800) 950-NAMI (6264)
(703) 524-7600
RARE DISORDERS
National Organization for Rare Disorders (NORD)
P.O. Box 8923
New Fairfield, CT 06812
(800) 999-NORD (6673)
(203) 746-6518
SICKLE CELL DISEASE
Sickle Cell Advocates for Research and
Empowerment, Inc.
P.O. Box 630127
Bronx, NY 10463
(718) 884-9670
Sickle Cell Disease Association of America, Inc.
National Headquarters
200 Corporate Pointe, Suite 495
Culver City California 90230
(800) 421-8453
(310) 216-6363
VISUAL IMPAIRMENT
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(800) AFB Line (232-5463)
(212) 502-7600
The Lighthouse, Inc.
111 East 59th Street
New York, NY 10022
(800) 829-0500
(212) 821-9200
(212) 821-9713 (for the deaf/hearing-impaired)
PARALYSIS
Christopher Reeve Paralysis Foundation
500 Morris Avenue
Springfield, NJ 07081
(800) 225-0292
Kent Waldrep National Paralysis Foundation
16415 Addison Road, Suite 550
Addison, TX 75001
(877) SCI-CURE (724-2873)
(972) 248-7100
National Spinal Cord Injury Hotline
2200 Kernan Drive
Baltimore, MD 21207
(800) 526-3456
PARKINSON’S DISEASE
The American Parkinson Disease
Association, Inc.
1250 Hylan Blvd., Suite 4B
Staten Island, NY 10305
(800) 223-2732
(718) 981-8001
National Parkinson Foundation, Inc.
Bob Hope Parkinson Research Center
1501 N.W. 9th Avenue
Bob Hope Road
Miami, Florida 33136
(800) 327-4545
(305) 547-6666
Health Care Financing Administration
7500 Security Boulevard
Baltimore, MD 21244
(800) MEDICARE (633-4227)
(410) 786-3000
(information about health care)
(Medicare information)
Hill-Burton Program
Health Resources and Services Administration
12300 Twinbrook, Suite 5200
Rockville, MD 20857
(800) 638-0742
(301) 443-5656
Medicare Rights Center
(800) 333-4114
(212) 869-3850 (in New York City)
The Medicine Program
P. O. Box 515
Doniphan, MO 63935-0515
(573) 778-1118