Here at ESRD Rockstars, we encourage caregivers to make themselves a priority, so that they can continue caring for the ones that they love.
Brenda encountered becoming a personal caregiver at a young age. After more than 30 years her responsibilities escalated enormously. During this period she learned of the limited resources available. She would also learn that caregivers are at a much higher risk for stress related illnesses, such as depressions and heart attacks. Looking for support to make her life easier and finding that there wasn't much available, she begin to advocate for caregivers. After an enormous amount of research, what she would find out about this process was life changing.
Working in hospital administration over twenty years as well as her experience in Aging and Healthcare Resources has given her the knowledge and expertise to navigate through what can become a complex and frustrating processes to find the right answers and resources needed for family members and love ones supporting ESRD patients. Brenda also serve as the Subject Matter Expert (SME) for The Renal Network/ESRD Network 10 as well as The Learning & Action Network (LAN) for The National Coordinating Center (NCC).
Brenda's goal is assisting family members and love ones in identifying barriers when caring for patients who have ESRD and provide support for those struggling with managing their lives while caring for their love one.
According to the National Kidney Foundation, 26 million American adults are estimated to have chronic kidney disease (CKD), although most don’t know it because early signs are often missed
548,000 Americans have irreversible kidney failure, or end-stage renal disease (ESRD), and require dialysis or a kidney transplant to survive
382,343 ESRD patients receive dialysis at least 3 times per week to replace kidney function
Because of an aging and overweight population, end-stage kidney disease – a condition in which the kidneys lose their ability to remove excess fluid and waste from the body — and chronic kidney disease are growing public health issues.
Across the country, 636,905 people are being treated for end-stage renal disease by dialysis or kidney transplantation, including the 114,813 new patients who were diagnosed with kidney failure in 2012. For three years in a row, from 2010-2012, the growth rate in the number of new cases has declined.
We must provide caregivers the tools needed to take care of themselves while caring for their love ones.